ME in the family

On this page you will find writings by several ME parents, and some translations from Norwegian media.
We’re both honoured and proud to publish other people’s texts.
Thank you, all!

Parents united

All these texts are translated from Norwegian originals. We will translate when we have the capacity, please be patient.

Never forget that all the efforts we put into the articles, the organisations, the blogs, the research, the sharing of promising findings … It’s all to try to improve the lives of the sufferers. As one parent says: “A little better is so infinitely better …”.

Sharing is caring!

In an October 2022 seminar called Families of children with ME and their encounters with the health and welfare systems, the ME Parents of Norway held a presentation on our experiences and views on some of the challenges that families with children with ME face

Not today A small glimpse into a sore reality. Children and adolescents with M.E. want to participate, but the disease can be relentless.
Doctors who listen, professionals who see – where are you?
Honest on having a child with ME
I went for walks in the evening and cried
Common misconceptions concerning ME-patients and their families
The Shoes Waiting.
Conclusion: M.E. He is 8.
I didn’t believe it. That a young boy could get that sick. For so long.
Dear Doctor. A poem about the friendly doctor who might not understand it all.
The Diagnosis. This was the day I became an ME mum.
My Beloved Child
What do we need from the doctor? Doctors appointment.
When everybody, including ourselves are very concerned. Concerning concerns
How to cope when your child keeps getting worse? Ode to the Computer Keyboard.
About a dusty piano and a pianist on pause The piano.
Trying to answer some of all the advices we get repeatedly in All those “good” advice!
Here you may read about the support of the fellowship of ME mums.
What happens when the children never
get better?
On behalf of the children

My son suffers from ME: A series of posts written by Hanne R. Her teenage son has ME.

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