Tag Archives: Children with ME

A young hero

Truls, a young boy of 12 years, has ME. Because of his ME, Truls is rarely able to leave home.  But when his doctor Kristian Sommerfelt asked for his help in educating medical students, Truls didn’t hesitate at all. He … Continue reading

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The Shoes

A pair of shoes on the door mat. They remained there for a long time. So long that my mind refused to remember how long. Lonely, desolated, waiting… Every time I walked through the doorway I saw the shoes and … Continue reading

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Conclusion: M.E.

The conclusion is clear. Our boy has been diagnosed with ME. He has symptoms from all over his body, pain in his muscles and bones, he has disturbed sleep and temperature fluctuations. Among other things. The doctor considers treatment that … Continue reading

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I didn’t believe it

I didn’t believe that a 12-year old boy could get sick and sicker just by going to school. That first he had to skip Physical Education  (this boy loved football!), then more and more classes until there were no classes … Continue reading

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A proposal – en invitasjon

Å vokse opp med ME: overleve barndommen og bli voksen som kronisk syk Du inviteres til å bidra til en antologi om barn med ME. Hvis du er en voksen som ble syk som barn eller tenåring, vil Utting-Wolff Spouts gjerne … Continue reading

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Letter to the King

Letter to King Harald of Norway from Martin and 58 other young people with M.E. ME mum’s confessions proudly presents an important letter to King Harald from Martin (17). The letter is also signed by 58 other children and youngsters … Continue reading

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Dear Doctor

Kind teachers want to do their best Headmasters need their reports The doctor, scratching his head, Says:  Fortunately I’ll soon be retiring You say you hurt You say you are in pain But I can’t see it I try to … Continue reading

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The Diagnosis

I remember thinking, the day I drove back home from the hospital, carrying a piece of paper with the diagnosis ME written on it, driving along with my boy next to me in the car seat. He was not able to sit … Continue reading

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When life was put on hold

Being the mother of two children with ME is both demanding and lonely. But this is not the most difficult part of it. We have translated an interview from Norwegian paper Laagendalsposten to English. Click to see Norwegian original: Gro … Continue reading

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My Beloved Child

Norwegian original ”Isn’t she lovely. Isn’t she wonderful. Isn’t she precious …” * My wishes for you are skinned knees and getting sunburnt. Exam stress and a broken heart. Not because I wish you harm, but because I with all my … Continue reading

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