Kategoriarkiv: Personal from parents of children with ME

Not today

Skrevet 18. september 2019 av ME-foreldrene

I gently walk into the room. Saying good morning in a soft voice. The answer from her bed is barely audible. «I cannot move my hands.» Carefully, I stroke her hands. You will have to stay home from school today. … Les videre →

Skrevet i ME, Personal from parents of children with ME | Legg igjen en kommentar

Doctors who listen, professionals who see – where are you?

Skrevet 13. juni 2019 av ME-foreldrene

But she was better now. Spring and warmth was good for her. A little better is so infinitely better than the dark hell of pain that we miraculously forget once she can sit up straight and watch some TV, or … Les videre →

Skrevet i ME, Personal from parents of children with ME | 1 kommentar

Honest on having a child with ME

Skrevet 7. august 2017 av Gravingen

– ”It’s tough to see this in print,” Stine says. “It somehow makes it more real, although what appears in such an interview obviously only is part of the reality we live in, the tip of the iceberg.” The Norwegian … Les videre →

Skrevet i ME, ME in Norwegian media, Personal from parents of children with ME | Legg igjen en kommentar

I went for walks in the evening and cried

Skrevet 7. august 2017 av Gravingen

When Stine’s daughter was at the sickest, she could not walk to the toilet alone. The mother juggled her job with sole responsibility for her ill daughter, and became increasingly tired. By Cecilie Skjerdal, journalist. Translated by The ME Parents … Les videre →

Skrevet i ME, ME in Norwegian media, Personal from parents of children with ME | Legg igjen en kommentar

A Christmas wish

Skrevet 13. desember 2016 av Gravingen

Dear friends and family, If you know someone with M.E., you are probably accustomed to their cancellations at the last minute or to them being late, the lack of invitations to their home and their passivity in most contexts. Maybe … Les videre →

Skrevet i ME, Personal from parents of children with ME | Legg igjen en kommentar

The Shoes

Skrevet 29. mai 2016 av Gravingen

A pair of shoes on the door mat. They remained there for a long time. So long that my mind refused to remember how long. Lonely, desolated, waiting… Every time I walked through the doorway I saw the shoes and … Les videre →

Skrevet i ME, Personal from parents of children with ME | Merket med , | Legg igjen en kommentar

Conclusion: M.E.

Skrevet 1. mai 2015 av ME-foreldrene

The conclusion is clear. Our boy has been diagnosed with ME. He has symptoms from all over his body, pain in his muscles and bones, he has disturbed sleep and temperature fluctuations. Among other things. The doctor considers treatment that … Les videre →

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I didn’t believe it

Skrevet 24. april 2015 av gansem

I didn’t believe that a 12-year old boy could get sick and sicker just by going to school. That first he had to skip Physical Education  (this boy loved football!), then more and more classes until there were no classes … Les videre →

Skrevet i Barn og unge med ME, ME, Personal from parents of children with ME | Merket med , | Legg igjen en kommentar

Dear Doctor

Skrevet 3. februar 2015 av ME-foreldrene

Kind teachers want to do their best Headmasters need their reports The doctor, scratching his head, Says:  Fortunately I’ll soon be retiring You say you hurt You say you are in pain But I can’t see it I try to … Les videre →

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The Diagnosis

Skrevet 20. november 2014 av gansem

I remember thinking, the day I drove back home from the hospital, carrying a piece of paper with the diagnosis ME written on it, driving along with my boy next to me in the car seat. He was not able to sit … Les videre →

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