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Kategoriarkiv: Personal from parents of children with ME
Not today
I gently walk into the room. Saying good morning in a soft voice. The answer from her bed is barely audible. «I cannot move my hands.» Carefully, I stroke her hands. You will have to stay home from school today. … Les videre
Doctors who listen, professionals who see – where are you?
But she was better now. Spring and warmth was good for her. A little better is so infinitely better than the dark hell of pain that we miraculously forget once she can sit up straight and watch some TV, or … Les videre
Honest on having a child with ME
– ”It’s tough to see this in print,” Stine says. “It somehow makes it more real, although what appears in such an interview obviously only is part of the reality we live in, the tip of the iceberg.” The Norwegian … Les videre
I went for walks in the evening and cried
When Stine’s daughter was at the sickest, she could not walk to the toilet alone. The mother juggled her job with sole responsibility for her ill daughter, and became increasingly tired. By Cecilie Skjerdal, journalist. Translated by The ME Parents … Les videre
A Christmas wish
Dear friends and family, If you know someone with M.E., you are probably accustomed to their cancellations at the last minute or to them being late, the lack of invitations to their home and their passivity in most contexts. Maybe … Les videre
The Shoes
A pair of shoes on the door mat. They remained there for a long time. So long that my mind refused to remember how long. Lonely, desolated, waiting… Every time I walked through the doorway I saw the shoes and … Les videre
Skrevet i ME, Personal from parents of children with ME
Merket med Children with ME, engelsk
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Conclusion: M.E.
The conclusion is clear. Our boy has been diagnosed with ME. He has symptoms from all over his body, pain in his muscles and bones, he has disturbed sleep and temperature fluctuations. Among other things. The doctor considers treatment that … Les videre
Skrevet i Personal from parents of children with ME
Merket med CFS, Children with ME, ME, ME mum, Myalgisk encefalopati
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Dear Doctor
Kind teachers want to do their best Headmasters need their reports The doctor, scratching his head, Says: Fortunately I’ll soon be retiring You say you hurt You say you are in pain But I can’t see it I try to … Les videre
Skrevet i Personal from parents of children with ME
Merket med Children with ME, ME, ME mum, Myalgisk encefalopati
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The Diagnosis
I remember thinking, the day I drove back home from the hospital, carrying a piece of paper with the diagnosis ME written on it, driving along with my boy next to me in the car seat. He was not able to sit … Les videre
Skrevet i Personal from parents of children with ME
Merket med CFS, Children with ME, ME, ME mum, Myalgisk encefalopati
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