Månedlig arkiv: januar 2014

We used to be anonymous. Behind closed doors and covered windows. Criticism and gossip. Accused and neglected! The lack of knowledge ruled. Almost nobody knew. We tried to keep our heads above the surface. Those we turned to for help … Les videre →

Morning of January 2.  New Year.  A happy new year? Fresh opportunities?  New start? New plans? Or the same as in the past He leaves his room.  Like in a trance. He does not look me in the eye.  The … Les videre →

Are you tired?  Get some rest! It will get better. A lot of people think that having ME means that you are just really, really tired.  That you can rest for a while and it will get better.  Some people … Les videre →

Sometimes I need to rest.  If I got up extra early one morning, had a busy day at work, or if I just were at home on standby with my son.  Whatever the reason, my head is tired.  My head … Les videre →

Summer holidays, fall break, winter break – birthdays, Christmas and New Year. These are times and days we look forward to – or not. Looking forward to something – to have expectations – anticipate something that gives us a break … Les videre →

Hva er verst? Er det det at kroppen reagerer med voldsom utmattelse på den minste lille fysiske eller kognitive anstrengelse? At selv de mest hverdagslige aktiviteter – som det å kle seg – forverrer symptomene? Er det det at resultatet av «anstrengelsen» ikke bare kan komme umiddelbart – men også først etter en dag eller flere? At man vanskelig kan vite om man burde stanset tidligere, for å unngå en kraftig forverring? Er det det at grensen for … Les videre →

We are fundraising to help a 14-year old girl who suffers from severe ME Norsk versjon her In Norway right now we have one of the most severe cases this country has seen when it comes to ME.  A 14-year … Les videre →

Some of you are women.  Some of you are men.  Some of you are young.  Some of you are even younger.  I am young enough to get hot flashes. I can remember that I – in what seems like a … Les videre →

English version here Et sted i Norge pågår nå det som trolig er en av de verste sakene i Norges ME-historie. En 14 år gammel jente med svært alvorlig ME utsettes for tvangsbehandling med sansestimulering. orges ME-forening bekrefter situasjonen.(her var det en link som ikke virket) Jenta ble frivillig lagt inn på sykehus for å starte opp sondenæring. Men sykehuset holdt henne der, hun fikk ikke beholde sonden hvis familien tok henne hjem uten å ha akseptert sykehusets aktivitetsplan. Jenta ble stadig sykere i løpet av de … Les videre →

Off to get some air then. Air, sunlight and a glimpse of the sky.  We take it for granted that we are able to get out and about every day.  It is good for you.  Prisoners, even in the most … Les videre →